Benefit concert, auction, sale planned for woman with Lyme disease

Dr.. Ernie Murakami

- January 16, 2012 at 14:19:33

send your doctor the following articles. (1) The Spread of Lyme Disease (2)The Brian Schmidt report. (3)The Manitoba Presentation (4) Dr. Pat McGeers report on three post mortem studies culturing ijve spirochetes from the brain. Dr Ernie Murakami -Murakami Center for Lyme.

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Susan McInnis

- January 13, 2012 at 08:18:04

I also suffer from the pain of lyme disease and see a doctor in the U.S. It is expensive but I have no choice but spend all my hard-earned savings to get this treatment. I have been completely denied treatment by several MD's here in Alberta. The testing for lyme disease is severely flawed and this huge problem must rectified. I am denied long-term antibiotics here at home because we followed the flawed, out-date guidelines of Infectious Disease Society of America (IDSA) which state that long-term antibiotics are not required. Let me tell you, the are required. But I can go to the United States and receive long-term treatment from a doctor there who is understands that if I continue to go untreated, it could kill me. I would continually get worse. Before I began this treatment, I was almost bed-bound, barely walking, in severe, relentless pain every moment of the day for three years before a doctor diagnosed me in the U.S. The Canadian government and the health care of each and every province has let down lyme patients, denied us care and in turn bankrupted us as we fight for our lives. After nearly two years of treatment, I am recovering well. I am on IV antibiotics through a PICC line for the last two months. Alberta health care and the HPTP (Home Parentheral Therapy Program) has denied me care in regard to my PICC (Peripherally Inserted Central Catheter). Another smack. I am consistently treated unfairly and unjustly by my province and my country of birth. It is disgraceful and change must be made. Lyme disease information must be given to doctors and they should be allowed to treat each patient as they see fit without harassment and fear of the College of Physicians. Our country and provinces need to admit that lyme disease is the fastest growing vector-borne disease and alert its citizens. My most sincere thoughts go out to Brenda and her family. Hang in there, one day change will come. You deserve free, proper healthcare like everyone else.

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kate richards

- January 13, 2012 at 08:12:19

As a Canadian with Lyme and a mother to five children with congenital Lyme, I am saddened that it makes the most sense of all for us to live in the USA and get treatment by doctors here in the states. Many doctors here are harassed as well, but we do have top doctors who are rebels against the system, and we are grateful for that. We must pay cash for all of our care and do not qualify for assistance here because of our citizenship as Canadians, but at least we got a diagnosis and are responding to long term antibiotics. So Canada, I am sad to have been forced to leave, and no longer feel so loyal to a country that claims to take such good care of its people.

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chris powell

- January 11, 2012 at 08:26:10

My heart goes out to Brenda and so many others like her with Lyme disease. If only Canada knew how to diagnose lyme in the first place and save people the suffering they must endure. To add insult to injury when lyme is finally diagnosed properly patients must seek help in the US because here in Canada the docs who know about lyme are harassed by the college of physicians and are forced into retirement. A disgrace in a country with supposed free health care. Now if only we could actually take advantage of the health care system now that we are de-insured by it for the crime of having lyme disease.

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