Although there’s no cure for 12-year-old Chelsey Livingstone-Rector right now, her mother says, there is hope for remission.
Chelsey Livingstone-Rector’s specialist appointment in the U.S. went well, her mother Angela Livingstone-Rector, right, says. Chelsey, 12, is fighting Lyme disease.
The pair travelled to New York in June for an appointment with a Lyme disease specialist.
“Dr. McShane is a wonderful person and was really down to earth with us,” Angela Livingstone-Rector said, adding that they have common ground, as McShane is Canadian and was successfully treated for Lyme disease.
They unfortunately hit a huge snag before their trip when thousands of dollars went missing from cards given at a benefit at the North End Recreation Centre on May 25.
“A lot of people came out to help and at the end, we ended up selling some of our things to get there.”
Despite missing much of the funds, Angela says she can’t thank the community enough for all their help including students and staff at East Pictou Middle School, their church, George Smith with Two Face Tattoos and countless others.
It’s not all about the funds either. Angela is grateful to a few of the players on the Weeks Jr. A Crushers team. For her birthday, they met Chelsey and took the time to get to know her.
“She tries to get to every game even when she is really sick and Jennifer Weeks wanted to do something special for her, which was really nice.”
The list goes on and on for all the people that have been generous with their support.
She says people are already trying to help for their next trip to the United States. Chelsey’s next appointment is scheduled in June 2014, but that depends on how winter progresses for her.
“If she gets worse, we may need to go sooner, but we are hoping for the best.”
Until then, she is having teleconferences every 12 weeks with Dr. McShane.
While remaining hopeful, Angela says Chelsey’s problems seem to get worse in the winter.
During the summer, the disease was mostly dormant with a few flare-ups, but the colder weather kicks it into overdrive.
Chelsey has had some problems with her kidneys and teeth due to a few of the medications she’s taking. It often leaves her tired as well, forcing her to miss more than two week’s worth of school already this year.
“She tries everyday to get up, but sometimes her medication is too hard on her and she needs to sleep. The staff at EPMS has been great and work hard to try to help her when she misses time.”
Angela hopes to arrange a walk for the illness in May and is in the process of making connections with people.
She thinks Pictou County needs a local support group for people who need help and don’t know where to go.
She hopes someday people that go undiagnosed for a long time will be able to be treated in Canada.
“For all our Lyme disease sufferers, please don’t give up.”
On Twitter: @NGNewsAmanda