June is Scleroderma Awareness Month. Scleroderma, a rare auto-immune disease that literally means “hard skin,” can cause thickening and tightening of the skin, as well as serious damage to internal organs. There is no known cause and there is no cure. Approximately 1 in 2,500 Canadians live with the disease, including approximately 200 patients in Nova Scotia. The effect of scleroderma on patients, their family, their friends, and their lifestyle is life changing.
The Scleroderma Society of Nova Scotia is committed to raising awareness and providing support to patients and their families living with the disease. It’s important that those living with scleroderma be aware of the support systems in place. Spreading awareness during Scleroderma Awareness Month is key to our organization’s success.
Run/Walk in the Park for Scleroderma on Saturday, June 16, DeWolf Park, Bedford. The Run/Walk is a national fundraiser and in 2017 Nova Scotia raised more than $26,000 among 150 participants. This year’s event includes a 5K and 1K Run/Walk, door prizes and a family barbecue. The Honourable Kelly Regan will present a provincial proclamation declaring June as Scleroderma Awareness Month.
The Run/Walk not only acts as our primary fundraiser, but also provides an opportunity for those living with the disease to mingle and learn from each other. Everyone is encouraged to attend to help us raise awareness of this rare disease.
A portion of the event’s proceeds will be designated to the David Shea Memorial Patient Support Fund, which financially assists those incurring treatment related expenses in our province.
For more information contact: 902-404-7811 or firstname.lastname@example.org
President, Scleroderma Society of Nova Scotia